Locked In.

August 28, 2012 at 11:05 pm Leave a comment

I do this for a reason. I want you to donate to a children’s charity and write to me. Please see the About Lesley page or read the instructions at the end of this post…..

Watching the news this morning I saw an interview with Jane Nicklinson. Mrs Nicklinson is the widow of Tony, who lost his right to die court battle two weeks ago. The devastation he felt hastened his end and he passed away last week. Mr Nicklinson suffered from locked-in syndrome after suffering a stroke seven years ago. The link below has the news report from this court battle. It is hard to watch, seeing Mr. Nicklinson’s distress but it is what he wanted people to see.


The National Institute of Neurological Disorders and Stroke defines locked-in syndrome as a rare neurological disorder characterized by complete paralysis of voluntary muscles in all parts of the body except for those that control eye movement. It may result from traumatic brain injury, diseases of the circulatory system, diseases that destroy the myelin sheath surrounding nerve cells, or medication overdose. Individuals with locked-in syndrome are conscious and can think and reason, but are unable to speak or move. The disorder leaves individuals completely mute and paralyzed. Communication may be possible with blinking eye movements.


Mr. Nicklinson had been an active and vibrant man before the stroke left him completely dependent. He felt the deprivations of his condition deeply and was frustrated by it and the burdens he felt he imposed on his wife and family. Jane Nicklinson epitomises in sickness and in health. She cared for her husband because she knew the mind of the man she loved was still there even when everything else had let him down. However, she was practical too. In the interview this morning she said it had been harder seven years ago when her life as well as Tony’s changed forever. During those years she left the house once a week to do the weekly shop, the rest of the time she cared for her husband. I doubt many of us would be as brave as she.

For his sake and hers, I am glad Tony Nicklinson has passed. I admire him for his determination to fight for a change in the law. I admire Mrs. Nicklinson for her love and dedication to the care of her husband. I hope that she will allow herself to smile, travel, enjoy life once she has finished grieving.

It has made me think. Most of us muddle through, balancing work and family. We blithely trip through life and consider our woes as mountains instead of the molehills they often are. It is when I see stories of real sacrifice and love that I stop and pause. We all have worries but it may do us good to put them into a larger context. Then we might find our own burdens a little lighter; allow ourselves to see others whose burdens are heavy and perhaps offer a helping hand?

I close, as always, with this:-

  • Please donate to a valid children’s charity of your choice.
  • Visit this blog and comment about your donation. Please also tell me what you wanted to be when you were 8. I still want to collect those tales and hope that some child will read about your words and deeds and want to do the same when they are older.

I will:-

  • Add your donation to the Totals page on this blog, totals are updated weekly.
  • I will also write some words about the current donations and the charity
  • Store all comments so that everyone can read them.

Thank you for reading.



Entry filed under: Children, Donating, Giving, Life, News, wheniwas8. Tags: , , , , , .

Neil Armstrong – When I Was Eight Nightmares.

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